A different shaped heart conversations about disability awareness
Welcome to A different shaped heart conversations about being awesome with a disability and raising awareness at the same time and absolutely Yes sometimes you have to say F…..CK you to your own mindset and especially your disability!
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Cerebral Palsy Is A Gift With A Pink Bow
<p>Send us Fan Mail</p><p>We hit pause on new releases while I deal with heavy stress, school, and medical recovery on 24-hour care until May 19. I share a real update on my hip healing, mobility with cerebral palsy, and how I’m planning future foot surgery without losing my independence. <br/>• Taking a short podcast hiatus to reorganise life until May 19 <br/>• Managing stress while juggling school, home life, medical appointments and care support <br/>• Hip replacement recovery update and what walking looks like right now <br/>• Cerebral palsy gait realities and why wheelchairs and power chairs matter for lon...
We Finally Put Danielle’s Name On The Podcast For A Reason
<p>Send us Fan Mail</p><p>Danielle landed a radio interview and I hadn’t even heard it yet, so we press play on the story behind the story. What starts as a quick recap turns into a real look at how local media moments can boost confidence, widen visibility, and shine a light on disability inclusion work that actually changes lives.<br/><br/>We talk about what the interview focused on, including Best Buddies and the personal connection that made the segment feel meaningful instead of performative. Danielle also got to sing her own songs on air, which is...
We Are Trying To Delay Surgery While We Find Reliable Accessible Transportation
<p>Send us Fan Mail</p><p>https://gofund.me/0400dcee2</p><p>Foot pain sounds simple until you’re the one staring at your shoes thinking, “I can’t do this today.” We’re checking in with a blunt, personal update on severe bunion pain, what the podiatrist says, and why we’re trying hard to keep surgery as a last resort. Recovery isn’t just inconvenient, it can mean months off your feet, lost strength, and a huge hit to independence. After a past hip replacement spiral that ended with aspiration pneumonia and an ICU stay, the risk calculation lo...
I’m Recovering From Surgery And Rebuilding My Next Step
<p>Send us Fan Mail</p><p>Tomorrow the cast comes off, and that one moment has me thinking about everything at once: healing, mobility, patience, and what it means to live with cerebral palsy while your body forces you to slow down. I’m home after a hip replacement and hamstring lengthening, following a month in the hospital, and I’m walking you through the real in-between stage where you’re not fully “back,” but you’re finally moving toward what’s next.<br/><br/>We get into the practical side of post-surgery recovery: the knee immobilizer, the bandaging questions, the...
From Infection And OT Confusion To Standing Again
<p>Send a text</p><p>Some days feel like a gauntlet: a hip that’s healing, an incision that went itchy-to-infected, a possible pneumonia flare, and a tangle of OT and PT notes that don’t quite line up. We walked through the whole maze with honesty, humor, and one bright anchor—standing again after a string of setbacks. That single moment of progress reframed the day and gave us a target to steer toward: by April, walk to the bathroom on our own.<br/><br/>We talk about what makes recovery so mentally hard: not just pain or fatigu...
Life Update: Hip Replacement, CP, And A New Path
<p>Send a text</p><p>The quiet after a hospital stay can feel louder than the beeps and hall lights. Coming home post–hip replacement and hamstring lengthening, we open up about the messy middle of recovery with cerebral palsy: the hope of cast removal, the wobble of weak muscles, and the puzzle of choosing the right physical therapy. Six weeks plus a few days in, the hip feels secure, but the next move matters—orthopedic PT for joint safety or neurological PT for tone, gait, and motor control. We walk through what each path offers, where they overlap, and...
From Hip Surgery To A New Path In Counseling
<p>Send a text</p><p>The first night home after surgery always tells the truth. We’re honest about the itch you can’t scratch, the cast you can’t ignore, and the stubborn hope that keeps you showing up for PT when the bed feels like the only safe place. This update pulls back the curtain on what recovery really looks like—two incisions, a knee immobilizer, and a plan to earn back each step with patience and grit.<br/><br/>We walk through the rehab blueprint: outpatient PT to rebuild strength and mechanics, home PT to reinforce safe mov...
Chocolate Cake Tried To Kill Me, But Insurance Might Finish The Job
<p>Send us a text</p><p>A single bite changed everything. What began as a straightforward recovery from hip and hamstring surgeries veered into aspiration pneumonia, a fight for air, and a crash course in medical advocacy. We walk you through the minute-by-minute reality: the warning signs that were missed, the plea for intubation that took too long to land, and the moment a routine anesthesia choice nearly collided with a known allergy. It’s unvarnished, emotional, and grounded in practical takeaways you can use if you or someone you love ever faces a similar crisis.<br/><br/>We op...
What If Recovery Is The Moment I Find Myself Again
<p>Send us a text</p><p>The countdown is real: I’m heading into a total hip replacement on Monday, and I’m bringing you into the plan, the fear, and the hope. After months of pain and a stubborn leg pulled up by CP tone, the goal is simple but big—get this leg to drop straight and make sitting, standing, and moving a whole lot more human again. I talk through what the surgery involves, why a titanium joint could change everything, and how we’re preparing for the curveballs that come with cerebral palsy.<br/><br/>I share...
Ocean Firsts And Mickey Magic
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